Very interesting video, thanks! I also benefited from using technology in my recovery, but a completely separate set of technologies for what Rory used. I had severe aphasia and apraxia, so I heavily used therapy apps to help with my speech, spelling & writing. And I continue to benefit from using technology, such as speech-to-text.
I'm hesitant to use some of the technologies that Rory used, for a few reasons. I think it's easy to get obsessive about the data generated by these technologies. This can be helpful, as it apparently for Rory, but I don't think it would be good for me. Before my stroke I used a smart watch to track my exercise. Yes, it drove me to exercise faster or further, but I actually found that I enjoyed the exercise less, because I was competing with myself. I have a new smart watch now, but I don't use it to track my exercise or anything else. It's just so that I can easily contact my wife in an emergency.
I'm also not sure which of those technologies, like sleep trackers and mood measures, have been validated by scientific studies. The few that I have tried were not impressive, although that was a few years ago.
By the way, although data doesn't lie (in the sense of being deliberately deceptive), it can certainly be inaccurate or biased, in all sorts of ways. It's important to be aware of these possibilities, and sometimes be skeptical of the data that one encounters.
Thank you Mark for adding your valuable insights to this discussion. Your comments are the start of exactly why Rory and I have started this project and we need survivor and care partner input!
We are just getting started with unpacking all the takeaways from Rory sharing his story. In fact Rory just joined us over here on Substack @rorypolera so I will be sure to call this to his attention.
You bring up so many great points including, how these tech tools made you 'feel', as well as the validation of these technologies and where they fall in the market, digital health technologies/FDA regulated devices vs consumer wearables and where is the line. (Case in point WHOOP getting a wrist slap earlier this week by the FDA about their marketing of their blood pressure readings from a wrist worn band. ).
Personally, I wouldn't be where I am in my own recovery or have piece of mind in my long term health surveillance without having the digital tools I've adopted to help me.
Will be diving deeper and breaking down each takeaway in Rory's feature story over the coming weeks, so thanks for getting us started and look forward to more comments from you!
By the way, still want to get you on a live event to tell your story how you are using tech to help with your aphasia.
Hi David,
Very interesting video, thanks! I also benefited from using technology in my recovery, but a completely separate set of technologies for what Rory used. I had severe aphasia and apraxia, so I heavily used therapy apps to help with my speech, spelling & writing. And I continue to benefit from using technology, such as speech-to-text.
I'm hesitant to use some of the technologies that Rory used, for a few reasons. I think it's easy to get obsessive about the data generated by these technologies. This can be helpful, as it apparently for Rory, but I don't think it would be good for me. Before my stroke I used a smart watch to track my exercise. Yes, it drove me to exercise faster or further, but I actually found that I enjoyed the exercise less, because I was competing with myself. I have a new smart watch now, but I don't use it to track my exercise or anything else. It's just so that I can easily contact my wife in an emergency.
I'm also not sure which of those technologies, like sleep trackers and mood measures, have been validated by scientific studies. The few that I have tried were not impressive, although that was a few years ago.
By the way, although data doesn't lie (in the sense of being deliberately deceptive), it can certainly be inaccurate or biased, in all sorts of ways. It's important to be aware of these possibilities, and sometimes be skeptical of the data that one encounters.
Regards,
Mark
Thank you Mark for adding your valuable insights to this discussion. Your comments are the start of exactly why Rory and I have started this project and we need survivor and care partner input!
We are just getting started with unpacking all the takeaways from Rory sharing his story. In fact Rory just joined us over here on Substack @rorypolera so I will be sure to call this to his attention.
You bring up so many great points including, how these tech tools made you 'feel', as well as the validation of these technologies and where they fall in the market, digital health technologies/FDA regulated devices vs consumer wearables and where is the line. (Case in point WHOOP getting a wrist slap earlier this week by the FDA about their marketing of their blood pressure readings from a wrist worn band. ).
Personally, I wouldn't be where I am in my own recovery or have piece of mind in my long term health surveillance without having the digital tools I've adopted to help me.
Will be diving deeper and breaking down each takeaway in Rory's feature story over the coming weeks, so thanks for getting us started and look forward to more comments from you!
By the way, still want to get you on a live event to tell your story how you are using tech to help with your aphasia.